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Thread: M.E CFS

  1. #1
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    Default M.E CFS

    I was wondering whether anyone who comes on this forum suffered from M.E or Chronic Fatigue Syndrome. If so, here's a few questions -

    1. How do your parents react to your illness, are they supportive or do you feel they don't understand entirely how you feel?

    2. Which of the common symptoms do you suffer from as a direct result of the illness?

    3. How do you feel have you managed school, or college? And, how have they treated you? (Alternatively, if you have a job, how have you're employers reacted to your illness?)


    I feel that my parents are very supportive of my condition, but they don't always understand how I am feeling because at the end of the day only I truely know what I am capable of each day. Sometimes I think they try to push me too far and expect too much of me.

    As a direct result of having CFS I suffer from the following symtoms, fatigue and tiredness, almost constant pain in my knees, memory problems (forgetfulness, brain fog etc), I'm totally intolerant to alchohol, poor temperature control, for example I'll be too hot, or too cold but never in between, sleep problems (unfreshing sleep, insomnia etc), and at times since being diagnosed I've suffered from brief depression from time to time.

    And, I think I've handled school/college well considering the illness. I try to attend as much as possible - whether its to go to a lesson and stay up to date with work, or to catch up with my social life. I've discussed my situation with my teachers and they're all very supportive and don't push me and run activities past me first so I can decide whether or not I want to take part. Sometimes I request time off and have work I've missed mailed home.
    Last edited by Kotu; 28-06-2006 at 12:09 PM.


  2. #2
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    I dont but my mom works with someone as ME she looks after here


  3. #3
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    Personally I dont but a close family friends mother does. We can see its hard for her because she has 6 grown up children and plenty of grandchildren that she cant participate with. Good luck in finding some help/support for your condition

    →he said call me now
    →and id come a running
    →If you'd call me now baby id come a running.

    •яα¢нєℓ •

  4. #4
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    2 people who i have known on habbo(x) have suffered from M.E

    personally, i dont know what it is like but i had glandular fever not too long ago, and according to one friend, thats how theirs started off. She said that M.E is a little bit lyk glandular fever except its alot lot worse.

    the condition i was in when i was ill,to me, was way too much for me to handle and its a good job i had friends to talk to.

    If thats how i felt with that, i dont even want to try and imagine what its like to have M.E where it can last for years and not just months.
    Mrs S Dalton
    09.08.2016
    Autistic

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